Mirakel, a nonprofit founded in 2013, is committed to introducing pioneering programs to support families in neonatal intensive care units, maternity wards, and those coping with child loss.
Pernilla Rönnholm, the co-founder in 2013 and sole founder since 2014, launched the organization after her premature twins' birth, where one tragically passed away due to ESBL klebsiella pneumoniae and sepsis in the NICU.
Her mission is to create a positive impact for present and future families. Mirakel advocates for single-family rooms in NICUs to actively mitigate infection risks and conducts global initiatives to raise awareness on antimicrobial resistance through media, the EU, seminars, and webinars.
Vanessa became an AMR patient advocate in 2013 after surviving a serious car accident and 10-year facial reconstruction that caused a highly-resistant MRSA infection on her face.
She was a patient advisor to several organisations including CIDRAP (USA) and served for three years as a member of the WHO Strategic Technical Advisory Group on AMR (STAG-AMR) between 2020 – 2023. She currently serves as a lay member to the Advisory Committee on Antimicrobial Prescribing, Resistance and Healthcare Associated Infection, UK (APRHAI) and is a civil society champion at the Africa CDC. Vanessa is also currently Chair of the WHO Task Force of AMR Survivors.
She has won awards for her advocacy including a Woman of Stature (WOS) Woman of the Year Award, FINDdx Voices for Diagnostics Award, and Antibiotic Guardian Award in the Community Communications category organised by the UK Health Security Agency (UKHSA).
She further was awarded an e-Patient Scholarship at Stanford University Medicine X in the USA.
With a professional background in marketing, Vanessa has also lectured on various topics including effective communication and infodemic management in relation to AMR, and completed training by the WHO in 2020.
She has also advocated the importance of patient and public involvement and engagement. Originally from South Africa, she now resides in the UK and has worked globally.
Vanessa was also the founder and currently serves as an Executive Director for The AMR Narrative.
Our aim is to develop and improve healthcare in NICU as well as within women's healthcare today and for future children and women. Our aim is also to inform, debate, make people aware of AMR and praoactively fight against AMR. We are always interested in collaborating across borders, finding new sponsors and supporters.